The First Time I Accepted Calling Myself Disabled
The modern day swear word - and accepting it
I avoided the word for a long time.
Disabled felt too final. Too heavy. Too visible. It carried an identity I was not ready to step into, even after my diagnosis. Multiple sclerosis was something I could say out loud. It sounded medical. It sounded specific. It allowed distance.
Disabled felt personal.
I told myself it did not apply to me. I could still walk. I could still go out. I could still do most of the things I used to do, even if they took more effort, even if they came with consequences.
In my mind, disability belonged somewhere else.
It belonged to people whose struggles were obvious. People whose bodies made their reality visible without explanation. People who did not have the option to hide it.
I was still hiding.
Not necessarily from others, but from the truth of what my life had become. I was adapting quietly, adjusting my expectations, planning more carefully, resting more often, all while holding onto the belief that I was still “not that bad.”
The word felt like crossing a line.
Once I said it, I could not take it back.
There was fear in that.
Fear of how other people would see me. Fear of being treated differently. Fear of being reduced to a label that did not capture the complexity of who I am.
There was also something deeper.
Internal resistance.
Calling myself disabled meant acknowledging the full extent of what had changed. It meant recognising that this was not temporary. It meant letting go of the idea that I could return to who I was before if I just tried hard enough.
Denial can be quiet.
It does not always look like refusal. Sometimes it looks like minimising. Like saying “I’m fine” when you are not. Like comparing yourself to others and deciding you are not “disabled enough” to claim the word.
That was where I lived for a while.
In between.
Not fully identifying with the term, but not fully free from the reality either.
The moment it shifted was not dramatic.
There was no announcement. No clear decision. It came in a quiet, ordinary situation where my body made the truth unavoidable.
I needed something.
A seat. Support. Space.
And I hesitated.
Not because I did not need it, but because I did not feel entitled to it. Because I did not believe I had the right to claim something designed for “disabled people.”
That hesitation said everything.
I was living with the reality of disability while refusing the language that gave me access to support. I was carrying the weight without allowing myself the recognition.
That was the moment I understood.
The word was not something being placed on me.
It was something that explained me.
Calling myself disabled did not change my body. It did not make my condition worse. It did not take anything away from who I was.
It gave me permission.
Permission to stop minimising.
Permission to ask for what I need.
Permission to exist without constantly proving that I am struggling enough to deserve support.
It reframed everything.
Disabled stopped meaning broken.
It started meaning recognised.
Recognised as someone whose body functions differently. Recognised as someone navigating a world that is not built for unpredictability. Recognised as someone who deserves access, understanding, and space.
There is still complexity in the word.
Some days, it feels easier to say than others. Some days, I still hear the old voice that tells me I am not “disabled enough.” That voice does not disappear overnight.
The difference now is that I do not listen to it in the same way.
I understand that disability is not a competition. It is not something that requires comparison or justification. It exists on a spectrum, shaped by individual experience, not by how it looks from the outside.
Accepting the word has been part of accepting myself.
It has allowed me to move from denial into honesty. From resistance into understanding. From hiding into visibility.
I am still the same person.
The same thoughts, the same personality, the same life shaped by different circumstances.
The word did not change who I am.
It allowed me to name it.
And in naming it, I stopped fighting something that was already true.
I am disabled.
And for the first time, that feels like clarity, not loss.
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