I started posting on Vocal with a goal of at least one post a week but I have already missed at least two weeks. I can’t tell you exactly why because I don’t have a name for it yet. The doctors know that I have a second autoimmune disease and that it is possibly attacking my nerves. I recently got a working diagnosis debunked but this isn’t the first one. The process of diagnosis can be long and painful. In the meantime, without knowing what is wrong with you, adjusting and asking others to adjust is difficult. With autoimmune disease, it almost never is an easy diagnosis, or even a difficult but quick House M.D. style one. This puts extra stress and anguish on those who are suffering. I have already told one of my own stories so I wanted to take a wider look at the problem.
Recently I went to an RV show with my mother because she had seen an advertisement for it and it wasn’t too far away or expensive. She has always fantasized about living in an RV, traveling the country once she retires. We saw so many gigantic monsters of RVs! Of course they were expensive, but they were also horrible for the environment, intimidating, and representative of excess. This was not the life that my mother wanted. Eventually we found the less popular, smaller RVs including one that looked like home to me! It was the GreyWolf Forest River 2020. A few key things about this RV jumped out to me as particularly liveable. I could see my day to day life happening in this trailer. It had:
You didn't want to put it in writing , didn't want it to be clear . Clear that you didn't want to write it out. You wanted me to be open, you wanted to hear my tales. The only truths you told me were your ails.
About ten years ago, I had a routine blood test done. I went right back to school and unsurprisingly, nearly passed out. I expected to go to the nurse’s office, be given some juice or something, and wait twenty minutes. I was put in a wheelchair and sent home. I suppose the nurse could tell something was really wrong. Later that day, my mom got a call from the doctor. I was anemic and it made sense that I’d pass out after a blood test. I had been feeling faint before but didn’t say anything until it hit it’s worst yet after the blood test. And I kept feeling faint. Over and over again, for years. At first, it was ignored and I was told to get my iron levels up. Then they said my iron levels were not low enough to cause this much trouble and sent me to a myriad of specialists. There were some problems with my heart rate, but they didn’t correlate with when I was feeling faint. They tried to test me for a seizure disorder, but they only triggered migraines. As you can imagine, I was extremely frustrated. Finally, I met my now primary doctor. He wasn’t 100% sure what was wrong, but he gave me instructions such as drinking tons of water and other tricks that are now second nature. Between that and starting to drink coffee, I was able to keep myself alert. I slowly started to have stomach issues but ignored them at first.