"The medical language of illness tries to reimpose the linear, speaking in terms of the chronic, the progressive, and the terminal, of relapses and stages. But we who occupy the bodies of crip time know that we are never linear, and we rage silently—or not so silently—at the calm straightforwardness of those who live in the sheltered space of normative time." ~ Ellen Samuels
//
I have a slow-burn temper scaling
your stairs with splintered fingers,
indignantly denying assistance - reminiscent
of able-bodied tunnel vision from adolescence.
I inherited a stoniness toward men, amplified
by my body's rebellion. Saving up
to buy a shower chair before my 23rd
birthday. A cheetah-print cane. I only
let my hair down in your bed where
you anoint me with peppermint oil
as salt melts on my tongue with stifled tears -
allergic to gravity and expecting punishment
born of indulgence: dirty sheets swaddling bodies
suspended from first light, whispering
"good morning" into your hairline. We latch
not for the sake of recovery. I peel back
the curtains with cosmic uncertainty.
//
Order me a silent confession with helpless
heat - an Indian summer - the hours
I finally allowed myself to shapeshift.
I'll write it on your back (a gun on the nightstand),
sandpaper neck and a crystal ball skull.
I'll trace it into your bathroom mirror with
desperate breath (invisible disability,
casual flesh). I'll ask you to love me
(with breaks in between) by the light
of the refrigerator. I'll teach you my body's
invocation of time - stubborn, vast; lovely, weary -
I'll teach you forgiveness in a language
of frown lines and thin skin. My art
of clinging and parting. Remember, as I do,
that crip time is intimacy, unyielding
transformation. Punctuated desire.
Crip time finds an exoskeleton to don in the
dark and can’t bear its weight by dawn.
//
You hold my hips as a futurist, encircle
me in the sheltered space just shy
of a sick bed. Patternless, we rest and
rise, disembodied and beautifully bruised.
//
Publication Credit: 'Sheltered Space...' first appeared in the Mersey Review Issue 2
About the Creator
Erin Shea
New Englander
Grad Student
Living with Lupus and POTS
Instagram: @somebookishrambles
Reader insights
Outstanding
Excellent work. Looking forward to reading more!
Top insights
On-point and relevant
Writing reflected the title & theme
Compelling and original writing
Creative use of language & vocab
Easy to read and follow
Well-structured & engaging content
Expert insights and opinions
Arguments were carefully researched and presented
Eye opening
Niche topic & fresh perspectives
Heartfelt and relatable
The story invoked strong personal emotions
Comments (4)
Agree with Randy Wayne. Beautifully expressed, Erin!!
Very eloquent expression of the trials of fear and love in the time of chronic illness. You invoked some powerful imagery and emotion here.
Oooo, this was so intense! Loved your poem!
Highly evocative of that broken space, screaming internally for independence, recognizing how much it means in spite of yourself that someone is there for you.