My Faces of Pain

by Jenny Hudson 11 days ago in humanity

"What an Incurable, Rare Disease you have!"

My Faces of Pain
Photo by Camila Quintero Franco on Unsplash

My name is not important. However, my PAIN is very important.I am but one face in pain out of millions.A accident (cut of my left hand) triggered the monster that lives in me now. It has crippled my entire body.CRPS, also known as Complex Regional Pain Syndrome, is a pain disease with no cure and is very misunderstood. Almost allof my "faces of pain", were treated with alternative treatment modalities before being placed on medications only.All the faces of pain share pain from diseases and injuries we never heard of and certainly never wanted. My pain was treated by: 50 plus stellate ganglion blocks( a needle injection into your neck),physical/occupational/aqua therapy,hypnosis,acupuncture and psychological visits. Before my accident to my hand that caused this burning, terrible beast of a disease, I was 100% healthy and was not taking any prescription medications or developed any mental disorders. I have now over 20 plus diagnosis from the disease and take over 15 prescription medications to this day since August of 2009.For me, all I underwent caused my disease to spread from my left hand to now encompass my whole body in just over three years! ( I have had it for now 12 years with no signs of remission)It is all very well documented in my medical records. My disease has crippled my body horribly. For all of my faces of pain, I suffer even more now because I functioned and functioned well on often high-dose opioid pain medication.Do I want all my faces of pain dead? That's a stupid question. So what has daily life been like since my diagnosis?I cried, took pain medicine, slept and cried some more.Weeks went by and the pain progressively got worse: pins and needles, burning sensation, color and temperature changes, and atrophy. As the months passed, the nerve damage spread up my left side from head to toe. I went to numerous pain specialists and underwent multiple nerve blocks (stellate ganglion blocks) over the next 3 to 5 years. I was literally exhausted from being in pain every day. The thought of having to wake up day after day in pain made me feel hopeless.Nerve pain is hard to explain. It is like pins and needles times one thousand 24/7. It’s like coming inside after being out in the snow when you were little and experiencing that burning/re-warming feeling 24/7. It’s the feeling of having rubber bands cutting off circulation 24/7. It’s exhausting and it’s exhausting being exhausted 24/7. So what advice would I give to newly diagnosed RSDS/CRPS (reflex sympathetic dystrophy syndrome, complex regional pain syndrome) positive people?Do not give up! If one doctor does not listen or understand, go to a second. If thirteen doctors do not listen, go to the fourteenth. Do your own research and listen to your body! So what is one thing I wish those without CRPS/RSD could understand?When I would go to doctor’s appointments and try to explain the pain and frustrations, I would often hear “well you look great, just keep doing what you are doing.” The biggest misconception one can have is thinking that just because someone looks great means they feel great. Just because I tried to hide my pain and actually get dressed and do my hair and throw a little mascara on does not mean I felt great. Just because I looked great does not mean my body was not screaming for help.So what encouragement would I give to "Warriors",who have had CRPS/RSD for many years?I would put it this way....RSD continues to be studied and is becoming more recognized in the medical field. With more knowledge comes more treatments and the possibility of a cure. What I also would like to add is this..I hope that each and every one of you "warriors", is you can find something that provides relief! Do not give up! You are a Warrior for a reason!

humanity
Jenny Hudson
Jenny Hudson
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Jenny Hudson

A mom,wife,a autistic child with a loving,lifelong soulmate of 15 years. An only child; a mother with Parkinson’s with strong ambition;a father determined with creativity. I presently live on top of a mountain; living so close to the skies.

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