What is Freedom?
Why will I never have it?
I want to start this with this statement: I chose the image above for a reason... I will likely never have freedom due to the fact that my epilepsy will likely never be controlled, according to my doctors, past and present.
My mom basically said I am useless, using different words, just because I can't work. I tried explaining having epilepsy hinders me from being able to have a "normal" job that a college student would have. I can't work in fast food, be a nanny, or even pet sit. I have this constant fear, always thinking, "Well, what if I have a seizure or a PNEA?"
Information on PNEA is included in this article: https://vocal.media/psyche/what-is-fnd-along-with-my-experience-so-far
Information about epilepsy can be found here: https://vocal.media/psyche/encountering-epilepsy
I never feel them coming on, so I can't get myself to a safe position. You would think after eight years, she would understand it enough to not be up my butt about why I am not working while in college, why I fail classes now (I never failed a class until college), and especially my poor memory. She also never understood why my depression can get as bad as it does. I have many pieces about mental health if you are interested in reading them. (It would be greatly appreciated.)
With the number of appointments I have, it's a nightmare to even think about doing school or working full-time. For example, from March 30th to May 18th, I have five appointments (besides my regular therapy every other week). Not having a full-time job means I also can't pay for classes completely and end up taking time off from school every few semesters. I don't want student loans for the rest of my life from the cheapest school I can go to.
I'm absolutely terrified of the thought of being home alone when I shower due to a third-degree burn I have from 2014. If I haven't already shared that story, I will at some point. I'm not ashamed of it like I used to be. Now I look at it as "This is what I've been through and I'm still fighting to stay alive."
I can't drive, and likely never will. Where I live, you have to be one year without a seizure. My neurologist told me when I was around 17 that I will likely never be seizure free. I am still trying my best for that but will still never drive due to my epilepsy and safety concerns. I take medication twice a day and even am trying a different diet, the modified Atkins diet, which is similar to the ketogenic diet. It is a low carb, high fat and protein diet. (Bacon is basically a staple food in my diet now and I used to hate bacon.)
I am scared of what I might do because of my depressive episodes from bipolar disorder. I have tried to end it too many times. I'm sick of getting to that point, so I'm trying to heal my mental health. It is the hardest trying to heal I have ever tried but I still put in the effort, just as I try to convince many of my friends to reach out for help when they need it.
Supporting myself would be impossible given the stage I am at in my life. Maybe I'll be there someday, but today and the near future will not be that time.
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If you managed to read all of it, thank you so much. I know I rambled a lot and I am very sorry for that. It was definitely not my goal to ramble, it just kind of happened.
About the Creator
Rene Peters
I write what I know, usually in the form of poetry. I tend to lean towards mental health, epilepsy, and loss/grieving.
Comments (2)
I'm glad you shared this. Your work with epilepsy is really important
Thank you for sharing this. It is good for people to get perspectives like yours, if just to be a bit more empathetic. I’m sorry that your mother is not more understanding of your position. I am proud of you for doing everything that you can to take care of yourself, though, including your mental health. That is most important.