When Writing about Disabilities

I'm a DeafBlind writer, when I'm not writing or researching my stories I like to read what others write about disabled people.

Some of the content I see is aggravating and ableist and continues to portray disabled people in a negative light with the words they choose to use.

Please note this is a personal opinion - living with a dual disability and chronic illness. There are others that have their own preferred label and identity.

Stop the Person First Language

This concept has existed for a long time - since the 80s' & 90s'. The Person First approach emphasizes using language that focuses on the person first rather than their condition or disability.

According to this approach, I should be addressed as "a woman with a hearing loss and is visually challenged".

*stares at watch waiting for them to finish*

What a mouthful. I'm DeafBlind - it's that simple. We need to change it to Identity First Language.

Identity first language places disability first and emphasizes that disability is an important part of a person's identity, not something that is separate and unimportant.

Identity-first language challenges the fear and avoidance of addressing disability that is often present in society. It validates the identity of disabled people and celebrates the diversity of human experience.

I cannot reduce my DeafBlindness to “medical conditions” only. Being DeafBlind is ingrained in every part of my life - how I do things every day, how I view life, how I think & react, and so on and on.

I live with it 24/7 and I'm just fine with that.

Negative Connotations

This one irks me so much. I see writers and journalists describing disabled people as:

These word choices imply that disability is a bad thing, a punishment or curse, and a burden.

We need to change the focus to acceptance. The majority of disabled people have accepted their identity and have many accomplishments and joy in their lives.

I once had a lady remark "You can't be disabled, you look happy".

We are living our lives to the fullest even though our "normal" is different from society's. It's time to change that.

Overblown Political Correctness

It's frustrating to see journalists come up with words to soften my disability.

Weird words like:

• Nonhearing
• Hearingless
• Hearing Challenged
• Handicapable
• Differently-Abled
• Diversely-Abled

Would you just stawwwwp!

It's Deaf, Hard of Hearing, or the generic term hearing loss. The term Hearing Impaired is offensive to many in the Deaf community. (Please note that some individuals may still use this term - respect their choice of labels).

Choosing words like Handicapable, Differently-Abled, or Diversely-Abled is an attempt to reframe disability as a positive by focusing on the "ABLE" part. This is a dismal failure as it still creates an "us vs. them" mentality that marginalizes disabled people.

Stop being Afraid

Having a disability isn't taboo, it's not shameful, harmful, or even contagious. (You should see how many people turn white as a ghost and back away slowly when they find out I'm DeafBlind).

Fear causes control.

You may believe that the practice of institutionalizing disabled people, keeping them hidden away from public view, and forcibly sterilizing them is a thing of the past. But sadly it's not - it's still happening.

A woman with Down Syndrome living in an institution was forced to be sterilized without her consent in 2010! Did you know that thirty-one states and Washington D.C. still have laws that allow forced sterilization today?

Society's need for control over things they fear or don't understand has a devastating impact on the lives of disabled people. It can make it difficult to find employment, housing, healthcare, transportation, communication - every aspect of their lives.

Using respectful words to describe disabled people the way we want to be described can help reduce this fear and promote understanding.

All You Need to Do is Ask

If you're going to write about a disability, please ask disabled people about positive word choices, the proper terminology, and learn their story. Interview several people, join their social media groups, and do your homework.

Even better yet - hire a disabled writer to do the story for you. There are sites out there like Disabled Writers and the Disability Visibility Project for a list of great writers.

I dream of a day when I can read positive stories about disabled people. A day when society sees disability as a difference, not a limitation.