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Living with a Disease

by Delilah Rivera 4 years ago in health
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This is my story...

Hello,

Thanks for the reading.

Well, to start off, my name is Delilah. I'm 29 years old, and I'm from Philadelphia Pennsylvania.

Normally I don't talk about my life online, but I want to give people like me a ray of hope and tell them that everything is going to be okay. I would also like to inspire people to not give up the fight against anything that life throws at them.

I have PKD (polycystic kidney disease).

What is that? You might ask.

Well, it's an inherited disorder that causes clusters of cysts to develop in your kidneys and its the fourth leading cause of kidney failure. It leads to kidney failure due to the cyst growth will cause a reduction in kidney function and causing the kidney to fail.a

A normal kidney is the size of a human fist, but with this disease, it can cause your kidney to grow the size of a football.

How I found out:

On September 11th, 2016, I was having really bad pain in my back, and other symptoms that resembled a kidney infection or possible kidney stone. Before you ask, how would she know it was a kidney infection? I did study medicine in college. Back to the story (lol). So I called my mom and asked her can she take me to the ER and she did. After many hours and a hospital overnight stay with a kidney infection diagnosis, I was sent home with antibiotics, and I was sent to the hospital urologist. I did start going to the hospital's urologist and after doing multiple testing, still being in pain, and not getting answers on what exactly what was wrong with me, I decided to seek out a second opinion, so I found my kick ass urologist at Penn Hospital, and on November 4th, 2016, the day of the appointment, I took all the testing from the previous urologist and hospital I was going to, and turn to find out they were misreading all my test results. Yeah, big shocker. Trust me, the doctor looked at me and said "why didn't they do anything? I said apparently it's all in my head, nothing's wrong with me, and you tell me, you're the doctor. After he looked over all the sets results, he told me that it's a possibility that I might have polycystic kidney disease. He sent me for a cystoscopy. It's where they put a camera up your urethra to check out your bladder and kidneys, and luckily the cyst was just simple cysts and not cancerous cysts. He concluded that I did, in fact, have polycystic kidneys and diagnosed me with polycystic kidney disease.

Many people ask this question all the time, "are you on dialysis?"

To answer that:

No, I am not on dialysis, nor am I in need of a transplant. I am still in the beginning stages of it. I am able to live on both of my kidneys without dialysis or a transplant.

How I'm dealing with this?

Here are a few things that I do to maintain my kidney function:

  1. I'm not drinking soda because caffeine is so bad for your kidneys, especially dark sodas because with this disease you are prone to kidney stones. I don't know if you've ever experienced it but they hurt like an MF.
  2. I'm not eating a lot of things with a lot of salt, because the saw is mostly sodium and your kidneys may have trouble keeping your sodium and water in balance.
  3. I am taking medicine regularly; a blood pressure medication because of this disease. It can elevate your blood pressure. I am also taking cranberry pills to prevent any future kidney infections or UTI (urinary tract infections).
  4. I'm drinking plenty of water to flush out my kidneys even though it makes me urinate so darn much.

Currently, there isn't a cure for it, but there is a treatment option to slow down the growth of the cysts. To be honest, I don't know when that will be available.

If you want to know more information about polycystic kidney disease and the PKD Foundation, you can visit: PKDcure.org

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About the author

Delilah Rivera

Hey lovely people, my name is Delilah I'm from Philadelphia Pennsylvania and I suffer from polycystic kidney disease. Majority of my posts will be about health, food, movies, music, and about my life and struggles of living with a disease.

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